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    Johns Hopkins University Press
    The Johns Hopkins University Press
    Johns Hopkins Univ. Press
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Death and Representation

The moral challenge of Alzheimer disease

Genetic Testing for Alzheimer Disease : Ethical and Clinical Issues

Dementia and aging : Ethics, values, and policy choices
    BINSTOCK Robert ; POST Stephen G. ; WHITEHOUSE Peter J.
    Johns Hopkins University Press , 1992, 184 p.
    Cote : RL E 1012

    BINSTOCK R. et al./ 1. The challenges of dementia
    I. Biomedical, experiential, and caregiving perspectives
    WHITEHOUSE Peter/ 2. Dementia : the medical perspective
    FOLEY Joseph/ 3. The experience of being demented
    SMITH David/ 4. Seeing and knowing dementia
    MARTIN R. et al./ 5. Human dignity, dementia, and the moral basis of caregiving
    II. Treatment decisions, advance directives, and euthanasia
    DRESSER Rebecca/ 6. Autonomy revisited : the limits of anticipatory choices
    MOODY Harry/ 7. A critical view of ethical dilemmas in dementia
    THOMASMA David/ 8. Mercy killing of elderly people with dementia : a counter-proposal
    BATTIN Margaret/ 9. Euthanasia in Alzheimer's disease ?
    III. Caring for people with dementia : justice and public policy
    CALLAHAN Daniel/ 10. Dementia and appropriate care : allocating scare resources
    BINSTOCK R. et al./ 11. The politics of developing appropriate care for dementia
    COHEN Gene/ 12. Alzheimer's disease : current policy initiatives

The ethics of Medicare reform

Ethics consultation : From theory to practice
    AULISIO Mark ; ARNOLD Robert ; YOUNGNER Stuart J.
    Johns Hopkins University Press , 2003, 214 p.
    Cote : 3.4/AUL/2003

    I. Foundational and theoretical questions
    AULISIO Mark/ 1. Meeting the need : ethics consultation in health care today
    MORENO Jonathan/ 2. Can ethics consultation be saved ? Ethics consultation and moral consensus in a democratic society
    BAYLIS Françoise/ BRODY Howard/ AULISIO Mark/ BROCK Dan/ WINSLADE William/ 3. Character and ethics consultation : even the ethicists don't agree
    II. Practical questions
    GLOVER Jacqueline/ NELSON William/ 4. Innovative educational programs : a necessary first step toward improving quality in ethics consultation
    ARNOLD Robert/ WILSON SILVER Melanie/ 5. Techniques for training ethics consultants : why traditional classroom methods are not enough
    RUSHTON Cynda/ YOUNGNER Stuart/ SKEEL Joy/ 6. Models for ethics consultation : individual, team, or committee ?
    FLETCHER John/ MOSELEY Kathryn/ 7. The structure and process of ethics consulation services
    MILES Steven/ PURTILO Ruth/ 8. Institutional support for bioethics committees
    III. Questions on the horizon
    SCHYVE Paul/ EMANUEL Linda/ WINSLADE William/ YOUNGNER Stuart/ 9. Organizational ethics : promises and pitfalls
    BOSK Charles/ 10. The licensing and certification of ethics consulatnts : what part of "No !" was so hard to understand ?
    Appendix. Core competencies for health care ethics consulation : the report of the American Society for Bioethics and Humanities

Chapter 6. Elderly persons with advanced dementia : An opportunity for a palliative culture in medicine IN: Ethical foundations of palliative care for Alzheimer disease / Ruth Purtilo, Henk ten Have
Document CEM

Ethical foundations of palliative care for Alzheimer disease
    PURTILO Ruth ; TEN HAVE Henk
    Johns Hopkins University Press , 2004, 368 p.
    Cote : 24.22/PUR/2004

    TEN HAVE Henk, PURTILO Ruth / Introduction : Historical overview of a current global challenge
    Part I. The health care challenge of Alzheimer disease : basic societal, pathological and clinical issues
    O'BRIEN Richard/ 1. Darkness cometh : personal, social and economic burdens of Alzheimer disease
    BRUMBACK Roger/ 2. Neuropathology and symptomatology in Alzheimer disease : implications for caregiving and competence
    BENNAHUM David/ 3. The clinical challenge of uncertain diagnosis and prognosis in patients with dementia
    Part II. European voices on U.S. and European models of palliative care
    TEN HAVE Henk/ 4. Expanding the scope of palliative care
    OLDE RIKKERT Marcel et al./ 5. Hospital-based palliative care and dementia, or what do we treat patients for and how do we do it ?
    BOITTE Pierre/ 6. Elderly persons with advanced demntia : an opportunity for a palliative culture in medicine
    Part III. Philosophical and theological explorations
    DEKKERS Wim/ 7. Autonomy and the lived body in cases of severe dementia
    LEE KISSELL Judith/ 8. The moral self as patient
    JANSSENS Rien/ 9. The practice of palliative care and the theory of medical ethics : Alzheimer disease as an example
    Part IV. Clinical ethics issues : focus on patients and caregivers
    WELIE Jos/ 10. The tendency of contemporary decision-making strategies to deny the condition of Alzheimer disease
    ELLENCHILD PINCH Winifred/ 11. Advance directives and end-of-life decision making in Alzheimer disease : practical challenges
    ILLHARDT Franz/ 12. Saying no to patients with Alzheimer disease : rethinking relations among personhood, autonomy, and world
    NORDENRAM Gunilla/ 13. The ethical challenge of treating pain in Alzheimer disease : a dental case
    GORDIJN Bert/ 14/ Alzheimer disease and euthanasia
    Part V. Organizational ethics issues : educational initiatives, laws, and allocation decisions
    FURLONG Elizabeth/ 15. The role of nurses and nursing education in the palliative care of patients and their families
    SCHEIRTON Linda/ 16. Ethical dimensions of Alzheimer disease decision making : the need for early patient and family education
    GEFENAS Eugenijus/ 17. Changing patterns of protection and care for incapacitated adults : perspectives from a European society in transition
    PURTILO Ruth/ 18. Social marginalization of persons with disability : justice considerations for Alzheimer disease
    JAVASHVILI Givi/ Commentary on Part V : A clinician's commentary from a post-Soviet society on organizational issues of care for Alzheimer disease
    Part VI. Research underpinnings for an ethical model of palliative care
    REYES Patricio/ 19. Biomedical research in Alzheimer disease
    HOLM Soren/ 20. Conducting research in the Alzheimer disease population : balancing individual, group, family and societal interests
    HADDAD Amy/ 21. Drugs and dementia : pharmacotherapy and decision making by primary caregivers
    Appendix A. The Declaration of Berg en Dal on ethical principles guiding palliative care of persons with Alzheimer disease
    Appendix B. Framework for an educational module for health professionals

Physician-assisted dying : The case for palliative care and patient choice
    QUILL Timothy ; PABST BATTIN Margaret
    Johns Hopkins University Press , 2004, 342 p.
    Cote : 22.6.4/QUI/2004

    BATTIN Margaret/ QUILL Timothy/ Introduction : False dichotomy versus genuine choice : the argument over physician-assisted dying
    Part one. Perspectives on mercy, nonabandonment, autonomy, and choice
    ANGELL Marcia/ 1. The quality of mercy
    QUILL Timothy et al./ 2. Nonabandonment : a central obligation for physicians
    PRESTON Thomas et al./ 3. The role of autonomy in choosing physician aid in dying
    BATAVIA Andrew/ 4. Disability and physician-assisted dying
    CASSELL Eric/ 5. When suffering patients seek death
    Part two. Clinical, philosophical, and religious issues about the ending of life
    PEARLMAN Robert et al./ 6. Why do people seek physician-assisted death ?
    BACK Anthony/ 7. Doctor-patient communication about physician-assisted suicide
    BEAUCHAMP Tom/ 8. When hastened death is neither killing nor letting die
    BROCK Dan/ 9. Physician-assisted suicide as a last resort option
    SHELBY SONG John/ 10. Death : a friend to be welcomed, not an enemy to be defeated
    Part three. Open practice in a legally tolerant environment
    GANZINI Linda/ 11. The Oregon experience
    GOODWIN Peter/ 12. The distortion of cases in Oregon
    COOMBS LEE Barbara/ 13. A model that integrates assisted dying with excellent end-of-life care
    VAN DELDEN Johannes et al./ 14. Thirty years' experience with euthanasia in the Netherlands : focusing on the patient as a person
    VAN DER KLOOT MEIJBURG Herman/ 15. The death of my father
    KIMSMA Gerrit et al./ 16. Assisted death in the Netherlands : physicians at the bedside when help is requested
    Part four. Political and legal ferment
    STUTSMAN Eli/ 17. Political strategy and legal change
    TUCKER Kathryn/ 18. Legal advocacy to improve care and expand options at the end of life
    MEISEL Alan/ 19. Physician-assisted suicide : shifting the focus from means to ends
    LAW Sylvia/ 20. Choice in dying : a political and constitutional context
    BARON Charles/ 21. Hastening death : the seven deadly sins of the status quo
    QUILL Timothy/ BATTIN Margaret/ Conclusion. Excellent palliative care as the standard, physician-assisted dying as a last resort

Neonatal bioethics : The moral challenges of medical innovation
    LANTOS John ; MEADOW William
    Johns Hopkins University Press , 2006, 177 p.
    Cote : 31.6/LAN/2006

    1. Overview and introduction
    2. Some facts about infant mortality and neonatal care
    3. The era of innovation and individualism, 1965-1982
    4. The era of exposed ignorance, 1982-1992
    5. The end of medical progress, 1992 to the present
    6. Economics of the NICU
    7. Four discarded moral choices
    8. The possibility of moral progress

The ethics of bioethics : Mapping the moral landscape
    ECKENWILER Lisa A. ; COHN Felicia
    Johns Hopkins University Press , 2007, 320 p.
    Cote : 2.1/ECK/2007

    Part I. Situating bioethics : where have we been ? Where should we be going ?
    LEVINE Carol/ 1. Analyzing Pandora's box : the history of bioethics
    BAKER Robert/ 2. A history of codes of ethics for bioethicists
    Part II. Bioethics and the problem of expertise
    ELLIOTT Carl/ 3. The tyranny of expertise
    LINDEMANN NELSON James/ 4. Trusting bioethicists
    Part III. Contributions and conflicts : policy and politics
    STEVENS Tina/ 5. Intellectual capital and voting booth bioethics : a contemporary historical critique
    ORENTLICHER David/ 6. Bioethics and society : from the ivory tower to the State House
    KUCZEWSKI Mark/ 7. Democratic ideals and bioethics commissions : the problem of expertise in an egaliatarian society
    CHARO Alta/ 8. The endarkenment
    TROTTER Griffin/ 9. Left bias in academic bioethics : three dogmas
    ENGELHARDT H. Tristram/ 10. Bioethics as politics : a critical reassessment
    FAITH MARSHALL Mary/ 11. ASBH and moral tolerance
    PARKER Lisa/ 12. Bioethics as activism
    Part IV. Contributions and conflicts : consultation in the clinic and the corporate world
    DEBRUIN Debra/ 13. Ethics on the inside ?
    SHARPE Virginia/ 14. Strategic disclosure requirements and the ethics of bioethics
    MORREIM Haavi/ 15. Ties without tethers : bioethics corporate relations in the AbioCor artificial heart trial
    Part V. Defining values and obligations
    BAYLIS Françoise/ 16. Of courage, honor, and integrity
    ZOLOTH Laurie/ 17. I want you : notes toward a theory of hospitality
    ANDRE Judith/ 18. Learning to listen : second-order moral perception and the work of bioethics
    TURNER Leigh/ 19. Global health inequalities and bioethics
    MYSER Catherine/ 20. White normativity in U.S. bioethics : a call and method for more pluralist and democratic standards and policies
    CHILDRESS James/ 21. Mentoring in bioethics : possibilities and problems
    LINDEMANN Hilde/ 22. Obligations to fellow and future bioethicists : publication
    Part VI. Assessing bioethics and bioethicists
    CHAMBERS Tod/ 23. The virtue of attacking the bioethicist
    BUCHANAN Allen/ 24. Social moral epistemology and the role of bioethicists
    KING Nancy/ 25. The glass house : assessing bioethics

Medicine and the market : equity v. choice
    CALLAHAN Daniel ; WASUNNA Angela
    Johns Hopkins University Press , 2006, 320 p.
    Cote : 7.3/CAL/2006

    Introduction. Of money, the market, and medicine
    1. From Adam Smith to HMOs : the origins of medicine and the market
    2. A tale of two cultures : Canada and the United States
    3. The endurance of solidarity : Universal health care in Western Europe and elsewhere
    4. The market in developing countries : an ongoing experiment
    5. The market wild card : pharmaceuticals
    6. The value of the market : what does the evidence show ?
    7. The future of the market in health care : undercurrents from the past, riptides from the future

Ethical imperialism : Institutional Review Boards and the social sciences, 1965-2009

Trust and integrity in biomedical research : The case of financial conflicts of interest


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